| Site |
Description |
| Ace
Advisory Trust |
Aiding
communication in education |
| AFASIC |
AFASIC
provides information, help and advice to families of children with
speech and language impairments and is a membership organisation. |
| ASBAH |
Aims
to improve services for people with spina bifida and/or hydrocephalus,
to extend their choices and maximise their opportunities for independence
through network of field advisers, specialists in mobility, education,
etc. |
| Birth
Defects Foundation |
The
BDF is a UK registered charity whose mission is to improve child health,
aid families and create awareness. BDF is committed to funding basic
clinical and ethically approved research into causes, prevention and
treatment of birth defects. BDF's here to help service provides a
professional and confidential service offering support to those affected
by, at risk of, or concerned about birth defects. |
| Blatchington
Court Trust |
Advocacy |
| British
Stammering Association |
Offer
information and support to all whose lives are affected by stammering.
Hold a database of local speech and language therapy services. Distribute
free information packs. |
| Carers
Uk |
Carers
UK is a campaigning organisation. We provide information and advice
on all aspects of caring to both carers and professionals. CarersLine
is a free advice line for carers staffed by welfare rights, community
care and benefits experts and answers over 22,000 carers' enquiries
each year. |
| CENMAC |
Assessment
and support of children whose educational progress is hindered by
their physical inability to communicate effectively in speech or writing.
Loans appropriate technological aids. |
Challenging Behaviour Foundation |
The Challenging Behaviour Foundation exists to demonstrate that individuals with severe learning disabilities who are descrived as having challenging behaviour can enjoy normal life opportunities when their behaviour is properly understood and appropriately managed, and to support parents and carers through education and information to enable this to happen. |
CHASE
- Children's Hospice Service
|
CHASE
is a very special children's hospice service, dedicated to the support
of children who are not expected to reach their 19th birthday. It
offers care and support for the children and their families. This
vital service is available at no cost to the families 24 hours a day,
every day of the year, in whatever way it is needed, emotionally or
practically. |
| Child
Growth Foundation |
An
'umbrella' organisation - parent/patient support for children with
growth disorders incorporating the UK Turner Syndrome Society/Bone
Dysplasia Group/IUGR Russell Silver Syndrome/Growth Hormone Insufficiency/SOTOS
Syndrome and PSM. |
| Children's
Legal Centre |
The
Children's Legal Centre is a unique, independent national charity
concerned with law and policy affecting children and young people.
The Centre opened in 1981 as the major UK project for the International
Year of the Child, and is staffed by barristers, solicitors and professionals
with expertise in child law. |
| The
Children's Trust |
Provides
3 services: 1) Residential & short term care with 24 hour medical
cover, nursing & therapy teams; 2) Rehabilitation for children
with acquired brain injuries; 3) St Margarets School - independent
residential special school for children from 5 - 19 with profound
multiple learning difficulties, open 50 weeks a year. |
| CLIMB
|
Climb
offers advice, information and support to carers and professionals
associated with metabolic disease. |
| Contact
A Family |
Provides
help and advice for families caring for children with any type of
disability or illness; aims to link families together and encourage
mutual support between parents; has contact names/addresses of specific
syndrome groups and local self help groups. |
| Council
For Disabled Children |
The
Council for Disabled Children is an independently elected, multidisciplinary
consortium operating under the aegis of the National Children's Bureau. |
| DELTA |
DELTA
is a nationwide support group of teachers and parents of deaf children,
providing support, information and advice to guide parents in helping
their children develop normal speech and to live independently within
a hearing society. There are regional branches which hold regular
meetings and events DELTA also runs conferences and courses for professionals,
parents and families, including summer schools for parents with hearing-impaired
children - while the children enjoy themselves, their parents attend
lectures, workshops and discussion groups. |
| Diabetes
UK |
National
charity supported by regional groups; also provides regional events
and projects for children with diabetes and their parents. |
| Dial
UK |
DIAL
UK is the national organisation for the DIAL network - 140 Disability
advice centres run by and for people with disabilities. DIALs give
free, independent advice on all aspects of disability over the telephone
and in drop-in centres: many can arrange to visit less mobile clients
in their own homes. As the national organisation for the Network,
DIAL UK promotes the interests and usage of disability advice centres
controlled by disabled people and provides information and support
services to DIALs and to other disability information providers. |
| Disability
Alliance |
Disability
Alliance is committed to breaking the link between poverty and disability
by providing information to disabled people about their entitlements
and campaigning for improvements to the social security system and
for increases in disability benefits so that they better reflect the
real costs of disability. |
| Disability
Challengers |
Disability
Challengers provides essential leisure, play and learning experiences
for young people with any kind of physical, learning or emotional
impairment. |
| Disabled
Living Foundation |
DLF
is a national charity that provides information and advice on disability
equipment to help solve the day to day problems that arise through
living with a disability. |
| Down's
Syndrome Association |
Provides
information support and advice on all aspects of the condition. |
| Dyslexia
Action |
Carry
out assessments, teaching and teacher training.
Dedicated to successful learning for dyslexic people.
Information and advice available. |
| Dyspraxia
Foundation |
Offers
advice, information, support, professional and parental conferences
and much more. |
| Eating
Disorders Association |
Support
and information for people suffering from anorexia, bulimia and their
families. Membership, information and local help, including self help
groups |
| Employment
Opportunities For People With Disabilities |
As
UK charity working directly with people with a wide range of disabilities
to help them find and retain work. Employment Opportunities seeks
to persuade others to positively recognise ability and potential.
We have a network of Regional centres offering practical help with
training and advice on job searches, CVs, application forms and interviews.
Many of Employment Opportunities' staff have personal experience of
disability in employment. Work closely with employers, the Employment
Service and other charities. Also offer advice and support to the
business sector. |
| Encephalitis
Support Group |
Encephalitis
Support Group is a national charity established in 1994, in response
to the overwhelming lack of information on encephalitis for people
affected by the condition and their need for mutual support in coming
to terms with its consequences. |
| Erb's
Palsy Group |
Support
group offering advice and support to families affected by Erb's Palsy. |
| The
Family Fund Trust |
The
purpose of Family Fund Trust is to ease the stress on families who
care for severely disabled children under 16, by providing grants
and information related to the care of the child. The Trust is an
independent organisation registered as a charity and funded by the
government administrations of England, Northern Ireland, Scotland
and Wales. Grants given include washing machines, holidays, leisure
activities, driving lessons, bedding, clothing and other items related
to the care of the child. |
| Headway
- The Brain Injury Association |
Headway
exists to promote understanding of all aspects of head injury and
to provide information, support and services to people with head injury,
their families and carers. There are over 110 local groups around
the UK. Over 50 run Headway House day care centres. Contact details
of the local groups are available from Central Office where we can
also provide straightforward information on many aspects of head injury. |
| Helen
Arkell Dyslexia Centre |
Consultations,
assessments, specialist tuition, speech and language therapy, support
of adults, other support services, computer services, services to
schools, professional development for teachers, conferences, courses
for students, library and resources, bookshop and mail order, bursaries. |
| Hemihelp |
HemiHelp
supports young adults/children with hemiplegia and their families.
Free membership for families and professionals. HemiHelp runs a telephone
helpline, produces factsheets and newsletters, runs workshops and
activity days and has produced an informative and entertaining video
for 8-14 year olds. |
| Home-Start |
A
course of preparation is provided in-house to all Home-Start volunteers
before they are matched with a family. |
| Huntington's
Disease Association |
Founded
in 1971 with aims of promoting research, relief and treatment; disseminating
knowledge about the disease; providing information, comfort and support
(including financial support when appropriate) to families and associated
professionals. |
| Hyperactive
Children's Support Group |
Offers,
information and support to parents and professionals who have concerns
for a child or children they consider to be hyperactive, ADD/ADHD,
autistic, Allergic and Dyslexic. Offer non-drug approaches. |
| I-CAN |
I-CAN
is the national educational charity for children with speech and language
difficulties. |
| Irlen
Centre Kent |
Irlen
Syndrome is a perceptual disorder that affects 12% of the general
population but up to 50% of those with dyslexia, ADD, ADHD, ASD and
learning difficulties; Irlen Syndrome causes perceptual distortions
of print and the environment, light sensitivity, eyestrain, headaches,
migraine, depth perception difficulties; it is treated with precision
tinted filters worn as glasses; the colours are specific to each individual
and are determined following a detailed and thorough diagnostic assessment
of the symptoms and of the colours needed; there is a wealth of research
including double blind masked placebo controlled studies showing the
efficacy of the Irlen Method. |
| Jigsaw
Trust |
An
ABA school for autistic children. The trust is the charity supporting
and running the school. |
| Let's
Face It |
International
mutual help organisation dealing with facial disfigurement; dedicated
to helping those who are facially disfigured, their family and professionals
who care for them; to understand and solve problems of living with
this disability. |
| Leukaemia
Care Society |
Leukaemia
CARE was initially founded by a group of parents whose children had
suffered from leukaemia. In addition to the support and friendship
this created, they also wished to extend this to other leukaemia patients
and sufferers in a similar position. Membership was extended to include
adults and their families in order to provide a better service to
patients including those suffering from allied blood disorders. |
| The
M.E. Association |
The
ME Association supports and informs all people involved with and interested
in myalgic encephalopathy. |
| The
Mental Health Foundation |
The
Mental Health Foundation, incorporating the Foundation for People
with Learning Disabilities, is the UK's leading charity working for
the needs of people with mental health problems and those with learning
disabilities.
It provides a daily mental health news service and directories of organisations, websites and events. Website visitors can use forums and bulletin boards, join a mailing list and find out how to support the organisation. |
| Motability |
Motability
is a registered UK charity, which helps disabled people become more
mobile. They help disabled people use their Higher Rate Mobility Component
of their Disability Living Allowance (DLA) or War Pensioners' Mobility
Supplement (WPMS) to lease or buy a car or buy a powered wheelchair
or scooter. |
| Muscular
Dystrophy Campaign |
Funds
research into treatments and cures for the muscular dystrophies and
allied muscle wasting conditions. Supports adults and children affected
with expert clinical care, counselling and grants towards equipment. |
| National
Association For Gifted Children |
No description |
| National Association For The Education Of Sick Children |
12
week course OCR accreditation as on-line tutor (approx 30 hours study) |
National
Association Of Toy & Leisure Libraries
|
Toy
libraries loan carefully chosen, good quality toys to families with
young children; some provide special toys and equipment for children
with special needs; a befriending, supportive service to parents and
other carers. For list of publications please contact above. |
| National
Asthma Campaign |
The
National Asthma Campaign is the independent UK charity dedicated to
conquering asthma. It funds asthma research, offers help and advice
and campaigns for a better deal for people with asthma. |
| The
National Autistic Society |
The
National Autistic Society exists to champion the rights and interests
of all people with autism and to ensure that they and their families
receive quality services appropriate to their needs. It has developed
a range of educational and support services; runs schools and adult
centres; offers families and carers information, advice and support;
works to improve awareness of autism; offers a diagnostic and assessment
service and provides training and promotes research. |
| National
Deaf Children's Society |
The
NDCS is an organisation of families, parents and carers which exists
to enable deaf children and young people to maximise their skills
and abilities and works to facilitate this process by every possible
means. |
| National
Portage Association |
National
Portage Association aims to work with families to help them develop
a quality of life and experience for themselves and their young children
in which they can learn together, play together, participate and be
included in their community in their own right. |
National
Pyramid Trust For Children
|
The
National Pyramid Trust offers a screening process for use in primary
schools to identify children with emotional and social problems. Suitable
children then attend an after school club run by trained volunteers. |
| Network
81 |
Network
81 offers practical help and support to parents throughout all stages
of assessment and statementing as outlined in the Education Act 1996.
Our national helpline offers and individual service linked to a national
network of local contacts. We can also offer advice and information
on the organisation of assessment in schools and give guidelines on
how to choose a school. |
| Parents
For Inclusion |
Parents
helping parents so that their disabled children can learn, make friends
and have a voice in ordinary school and throughout life. Aims to help
parents whose children are said to have special educational needs
to get the support their children need in mainstream schools. |
| Parents
At Work |
Campaigns
to help parents, children and employers by helping parents combine
their work commitments and home responsibilities. |
| Prader-Willi
Syndrome Association |
Offers
practical advice and help to carers of those with Prader-Willi Syndrome
and people with PWS. |
Queen
Elizabeths Foundation
Disability Information Services
|
Free,
confidential, independent information service on all aspects of disability
for disabled people, their carers and service providers, aimed particularly
at those living and working in Surrey. Covers all disabilities and
age groups. |
| RADAR |
Radar
promotes the equality of rights and obligations throughout society.
It works to enable people with any disability to control their own
lives and enjoy to the full the opportunities which society, the economy
and the environment provide. |
| Rathbone
Special Education Advice Line |
National
helpline offering advice and support to parents with children with
special educational needs, helping them gain for their children an
education appropriate to their potential. Areas of help: school admissions,
school stages, statementing (and statement analysis), tribunals and
appeals, bullying. |
| RNID |
The
Royal National Institute for Deaf People (RNID) is the largest charity
representing the 8.7 million deaf and hard of hearing people in the
UK. As a membership charity, we aim to achieve a radically better
quality of life for deaf and hard of hearing people. We do this by
campaigning and lobbying vigorously, by raising awareness of deafness
and hearing loss, by providing services and through social medical
and technical research. |
| Scoliosis
Association UK |
An
independent national support group which provides information on scoliosis
and contacts for parents of children who have scoliosis. |
| SCOPE |
Scope
is a national disability organisation whose focus is people with cerebral
palsy. Scope's aim is that disabled people achieve equality: a society
in which they are involved, and have the same human and civil rights,
as everyone else. Local priorities: enquiry service offering advice
and support to individuals and organisations. |
| SKILL |
Works
to develop opportunities in post-16 education and training for people
with any type of disability. |
| SESDA |
SESDA
is run by a voluntary committee who send information on dyslexia to
all private and state schools. We aim to increase dyslexia awareness
with practical advice for parents, teachers and classroom assistants,
through our conferences, meetings and courses. |
| The
Sunflower Trust |
The
Sunflower Trust provides a unique approach to improve the health,
success, performance and self-esteem of children with learning difficulties. |
| Surrey
Association For Visual Impairment |
Provides
a full range of services, aids and equipment for blind and partially
sighted people resident in Surrey. Maintains statutory register. Provides
comprehensive rehabilitation service. Maintains resource centre and
low vision aid studio. |
Surrey
Care Trust (Parenting Circles)
|
Project
runs groups for parents to help with parenting skills - all age ranges. |
| Surrey
Young Carers Project |
No
description |
| Tuberous
Sclerosis Association |
Supports
people with tuberous sclerosis and their families or carers. Promotes
education, publicity and information to increase awareness and understanding.
Encourages and sponsors research into the causes and management of
tuberous sclerosis. |
| Twins
And Multiple Births Association |
The
Twins and Multiple Births Association (Tamba) aims to provide information
and mutual support networks for families of twins, triplets and more
highlighting their unique needs to all involved with their care. |
| UK
Thalassaemia Society |
Aims
and objectives of the society: The relief of persons suffering from
Thalassaemia. The promotion and co-ordination of research in connection
with Thalassaemia. To educate people on the problems of Thalassaemia.
Lectures with the aid of slides and/or video films in order to explain
Thalassaemia in simple language to any group of people who wish to
learn about it. To offer counselling to sufferers and carriers. To
bring together patients, families and well-wishers to exchange ideas
and information. To raise by any legal means the funds required for
the above activities. Organisation of dinner/dances, sponsored activities,
jumble sales, auctions, etc. Also receive donations from private individuals. |
| Unique - The Rare Chromosome Disorder Support Group |
Unique offers contact with families with an affected member who has the same rare chromosome disorder or, who has similar symptoms or practical concerns, irrespective of specific chromosome disorder. It produces a comprehensive range of family-friendly, medically-verified leaflets on various rare chromosome disorders. There is a network of local contacts and Unique promotes awareness of rare chromosome disorders to the public and and professional workers. It co-ordinates families to assist in research and has a password-protected discussion forum on the website for registered members. It publishes a magazine three times a year and has information available, details on request. Unique has over 6,500 affected families and many professionals as members world-wide. |
| Youngminds |
YoungMinds
is the national charity committed to improving the mental health
of all children and young people.
|
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